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Archive for December, 2007

Autism Quote of the Week

Sunday, December 30th, 2007

I was the first to announce the “autism epidemic”, in 1995, and I pointed out in that article that excessive vaccines were a plausible cause of the epidemic. As you know, an enormous amount of clinical laboratory research (as opposed to epidemiological research), has been accumulated since that time, supporting my position. (I did not know then that the vaccines contained mercury, although I had been collecting data since 1967 from the mothers of autistic children, on any dental work they may have had during their pregnancy.) The evidence is now overwhelming, despite the misinformation from the Centers for Disease Control and Prevention, the American Academy of Pediatrics and the Institute of Medicine. The (Pretending to) Combat Autism Act By Bernard Rimland

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It’s Huge!

Saturday, December 29th, 2007

Check out our biggest event of this year!

Is New Year’s Eve Just Another Night?

Thursday, December 27th, 2007

Last year I stayed home with AJ while my husband went to a friend’s home for dinner. Granted, I did not feel well but still, the evening was pretty lame.

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I remember living the life when we were younger…spending the evening in a hotel with friends in 1998/1999 (the year we married) and at an all inclusive resort in 2004. They even shut down Main Street in our town in 1999/2000 and we hit every establishment with friends. Since we hit our mid 20’s we have obviously slowed down but I know of some friends who have not even though they have children.
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Last Minute Donations

Wednesday, December 26th, 2007

The season has passed for gift giving for most of us (for some of us we still stock pile sale items for birthdays and next year) but there is still time to get those last minute donations in for tax credits. Not only do these items benefit research but some benefit children with autism directly, as they go directly back to the children and their families. Some of the donations go to research and programs. Here are a few places to get some Autism gifts and Autism Awareness items. autism1.jpg

Autism Speaks has a store that carries Gift ideas such as Autism neckties, bowties and cummerbunds, holiday gift bags and wrapping paper, baseball caps, puzzle piece pins and car magnets, a beach tote and towel set and my favorite, a woman’s fleece. (more…)

What Really Matters

Tuesday, December 25th, 2007

Today is Christmas and for us it means AJ will be overwhelmed, overstimulated, and out of control because he just can’t handle it all.

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Christmas is not a happy time for us. It can have its shiny moments but overall it is just too hectic for him to make any sense of it all. Remember, AJ does not have autism but he is dealing with the results of institutionalization, neglect, trauma, and has severe sensory integration dysfunction. We also believe that there are some other issues that we are dealing with but we may never know what those are.

What we do know is that Christmas is supposed to be about family. He is just starting to learn what family really means and he is sad about that. He is grieving his birth mother and wanting a sibling, which we told him is in the works. He loves his grandparents, his aunts and uncles (the ones far, far away in India and in Georgia) and the ones right here. He desperately wants to socialize but gets so overwhelmed that he just can’t. So, we escape to quiet rooms and try to calm him but it does not always work.

That is why I am hoping that this year he finds that one toy to latch onto as a security blanket. Last year there wasn’t one and there were just too many toys in my aunt’s basement for him to function. Maybe this year we will take his new slinky’s or the new Rainbow Waterfall. Perhaps those will work.

Merry Christmas!

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Look at all the Pretty Lightses!

Monday, December 24th, 2007

As much as AJ is hypersensitive to lights he loves them and can’t get enough. Well, this, I think is much more than enough for him!

I perused all of the Christmas light displays on You Tube and this one is my favorite.

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Autism Quote of the Week

Sunday, December 23rd, 2007

“If a child cannot learn in the way we teach … we must teach in a way the child can learn.”

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Friday Freebies: Pasta Crafts

Friday, December 21st, 2007

Every kid loves pasta…even gluten free kids.

This fabulous gluten free (yes, even the glue if you use Elmers!) craft can be made with any child, even the most tactilely defensive or the ones who have trouble with fine motor skills.

Materials:
Rice Pasta in all shapes and sizes. You can also use spelt pasta but some kids have issues with spelt…so stick with rice.
Glue
String
Wax Paper (more…)

Visual Calming for Sensory Integration

Thursday, December 20th, 2007

I discovered yesterday that what calms AJ most is visual therapy, not proprioceptive or vestibular. This is quite contrary to what we have been told or have been doing…interesting? It was sure interesting to me, as I thought he was always visually stimming. Well, perhaps he is in his own sort of way but he is stimming to calm himself.

Today I went in search of some stocking stuffers to fill that little stocking of his (which, by the way, he pulled off the mantle yesterday and learned the hard way that stocking metal stocking holders really hurt).
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Calming Activites for the Sensory Seeker

Wednesday, December 19th, 2007

We continue to deal with AJ’s overstimulation issues and impulsiveness so we are looking into things that will help him, especially during this holiday season. Products like his Bear Vest are extremely helpful during times of high stress and his blanket helps him sleep at night. But that is just not enough for him right now.

I have spoken to several different OT’s in the past week about his sensory integration and things could potentially help him calm. Their suggestions? Heavy Work and swinging.
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This Week on Autism…in the News

Tuesday, December 18th, 2007

This week in the news:

1. The University of Pittsburgh’s Center for Excellence in Autism Research received a $9.6 million grant from the National Institutes of Health.

The funding will come over five years and is a result of the school’s program becoming an Autism Center of Excellence.

Researchers will focus on how the brain develops, how the face and face emotion is recognized, how language is understood, and how decisions are made and problems are solved.
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The Do’s and Dont’s of Visiting With Santa

Monday, December 17th, 2007

Is your little one afraid to see Santa this year? Is he overstimulated by the mall and all the glittering lights, afraid of all the people, conscious of every detail around him, ready to flee at the slightest movement of someone in line, refusing to put on that shirt and tie for grandma? In my search for tips on how to prepare AJ to visit Santa I only found two posts…This one and this one so it was obvious that it needed to be addressed.

Every parents’ dream is to get that beautiful picture of their son or daughter with Santa for the very first time. (Well, at least I know my dream was and I know that my mother pushes me to get my son all dolled up every year and take the most perfect posed shot I can.) But it is just not a reality for kids with autism or SPD, for children with developmental delays like PDD or anxiety.
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Autism Quote of the Week

Sunday, December 16th, 2007

Autism is the fastest growing developmental disability in our nation.
Mary Bono

Friday Freebies: Sock Monkeys, Gingerbread, GFCF Candy

Friday, December 14th, 2007

So you want to know how to make a sock monkey…and the best places to learn how to make gingerbread? OKAY, OKAY! I will tell you! And, I will throw in the GFCF candies for the gingerbread just for kicks, alright?

Happy now? Just teasing. I love sock monkeys and I LOVE the smell of fresh gingerbread. Just please DO NOT give it to AJ.
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Gluten Free, Casein Free Christmas Cookies

Thursday, December 13th, 2007

Gluten Free and Casein Free Holiday Cookies.

Big Batch Gluten-Free Christmas/Sugar Cookies

* 3 cups powdered sugar
* 2 cups granulated sugar
* 2 cups shortening
* 6 eggs
* 1 Tbsp salt
* 1/4 cup vanilla (yes, that much)
* 1 cup amaranth flour
* 2 cups potato starch
* 2 cups sweet rice flour
* 4 cups brown rice flour
* 2 Tbsp xanthan gum
* 3 Tbsp baking powder

Preheat oven to 325*. Mix together the flours, starch, xanthan gum and baking powder with a whisk until well-combined. Set aside. Cream together the sugars, shortening, eggs, vanilla and salt. Add flour mixture, about 1/4 at a time, stirring with a wooden spoon. Once the flour mixture is mostly incorporated, knead the dough in the bowl, slowly punching the dough down in the middle and folding the sides of the dough into the middle. Or, put the dough on a non-stick surface (like a silicone mat or a marble slab), and knead it on there. The mixture will have the consistency of Play-Doh, but not too soft. If it is too dry, add a Tbsp of water at a time until it will gather into a ball. Resist adding water if at all possible. The dough works best if it is not very moist.

After the dough is well-mixed, several things can be done with the dough. For all recipes, greasing the pan is not necessary. Unless a crispy cookie is desired, bake (preferably on insulated pans) at 325* until the edges are just golden. (Hint: for your own insulated pans, take two regular jelly roll pans, and between them, add a layer of heavy duty aluminum foil that has been balled up, then mostly-smoothed out, retaining many of its wrinkles, creating an air gap between the two pans.)

For “plain” sugar cookies:

* As suggested in the cookbook, roll dough into very small balls and flatten to a wafer with the bottom of a sugar-dipped glass or cookie stamp. Bake until golden brown. This will produce a light, crispy cookie.
* Roll into larger balls and flatten to about 1/4″ thick. Bake until edges are just golden. This will produce a soft, chewy cookie.
* Divide the dough into about 4 parts, wrap each ball in plastic wrap, and refrigerate until fairly firm. Place chilled dough on a pastry mat or on wax paper, top with plastic wrap, and pat and roll out until dough is about 1/8″ to 1/4″ thick. Use cookie cutters for your desired shape(s). The thinner the dough, the more crispy the cookie.

More Holiday Cookies:
Christmas Sugar Cookies from Celiac.com *requires substitution for margarine or use of Fleishman’s unsalted margarine. I use Spectrum Shortening.
Cranberry Shortbread and Maple Nut Date Bars
Cinnamon Stars
Ginger Cookies

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