Summer Reflections, I am SO Proud of You
The start of this summer, as many of you remember, was very difficult for us, as we were beginning our chelation with Pfeiffer Treatment Clinic. Little Pickel had an extremely difficult time with his initial toxin die-off and then again when we introduced the Nystatin, a yeast treatment it got even worse. We had days of constant, literally constant screaming.
However, his improvement this summer, has been dramatic. In fact, we are so enthusiastic about his progress that we are going to keep him on the chelation protocol for several more months because it is a vitamin and amino acid therapy and can do no harm to his system…only good. We realize that this can be costly to us but we see such a different kid and we love it.
What else have we done? Gosh, what we have done since he came into our family back in 2005 is so complicated I would not know where to start. However, I do want to share with you where we have seen our major successes because I think many of you can benefit from them. In fact, I wrote an email to a reader last week who had just received a diagnosis for her son, adopted 2 years ago and very much in the same state as Little Pickel.
My response was that 2 years ago I would have said that he was autistic; a year ago that he had institutional autism; 6 months ago that he was still dealing with institutional autism and some severe SPD and speech and language delays and even some Post Traumatic Stress.
Now? If I were to have to give him a diagnosis I would say he had a speech and language delay and that he deals every moment with SPD.
I still think that he has severe SPD and that brings out a lot of his autistic looking behaviors but I certainly don’t think he is autistic anymore.
Whew. That is a huge statement for me to make. But its true.
I am So Proud of My Son.
Despite all of the heartache he gives me, all of the headbutts he gives me, all of the screaming he does, he works, and he struggles, and he fights through the fog in his head everyday.
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August 29th, 2007 at 8:14 pm
Marcie,
What a beautiful post about your son! I’m in tears. My oldest was thought to be autistic when she was very young. Though it was finally determined that she was not autistic, nobody could tell us what was causing her so many difficulties. It seems I live in an area untrained and uneducated in SPD, which I believe is the root of all my daughter’s difficulties. She will be 9 years old in October and doing far better than I dared to dream. At the same time, she still has her daily struggles, especially in social settings and in self-regulation. I am able to dream bigger dreams for her, but I do not know what her future has in store as she grows. Good for you for advocating for your son and seeking out what he needs in his life. You’re a great mama!
August 30th, 2007 at 10:36 am
Thanks Rebecca. Some days are still hard…like the last few. He has been going through a NO phase and its driving me nuts.